This new i-sense virtual Q&A series highlights topics related infectious disease outbreaks preparedness and response – focusing on what we have learnt from the COVID-19 pandemic, what we need to do to ensure we are ready to respond to the next infectious disease outbreak, and how can we better protect our population and healthcare systems now and in the future.
Each month we will explore different themes related to developing tools and technologies to track, test and treat infectious diseases. As preparing for and responding to an outbreak is a collaborative effort, we’ll gain perspective from experts in academia, government and policy, healthcare, and industry.
Below is the recording from our discussion on this month's topic 'Data sharing and privacy during a pandemic'.
Our panel members
Policy Lead, DataLab
Jess is Policy Lead for University of Oxford's DataLab and a researcher in the Oxford Internet Institute's Digital Ethics Lab. Previously Jess was AI subject matter expert at NHSX.
Senior Data Manager, the Health Foundation
Richard supports analysts at the Health Foundation by acquiring access to sources of (pseudo)anonymised patient data, ensuring that data governance processes are followed, and identifying new data linkages to discover insights into quality of care. In 2007, Richard joined the Office for National Statistics’ Virtual Microdata Laboratory. Since then, Richard has been involved in setting up and managing a number of data infrastructure projects in the UK and in Europe, including at the UK Data Service and Cancer Research UK.
Richard has written a number of articles about data access and data privacy, including how to ensure research findings do not breach patient data confidentiality.
Director of Privacy, GSMA
Boris is the Director of Privacy at GSMA, the global industry association that helps shape the future of the mobile industry. In his role, Boris seeks to lead public debate around privacy in mobile and to help global membership deliver long-term benefits for mobile users. He is a firm believer in the value of data privacy leadership: organisations can go digital, innovate and grow and at the same time foster consumer privacy and trust.
If you have suggestions of topics you would like to explore in the future or questions you want answers, email them to firstname.lastname@example.org.